Community involvement in the Centre
Involving those who live with T1D or care for a child who lives with T1D is a primary focus for the Centre. This lived experience integral to making sure the research our Centre does is relevant and outcomes create meaningful impact for how they manage the condition on a day-to-day basis.
Over the last three months we have been busy working in partnership with researchers on many different projects. Some of these are:
- Creation of Research Buddy Database for future projects. If you are interested in being a Research Buddy and work alongside our researchers on specific projects, please contact our Community Involvement Coordinator at community@childrensdiabetesresearch.org.au to find out how.
- Projects with Research Buddies:
- Early Access to Insulin Pumps at Diagnosis;
- DiabHQ - Patient Portal Reference Group and Steering Committee;
- CaLD Resources;
- Use of CGMs
- Community Conversations held:
- Supporting Families with Early-Stage T1D
- Focus Groups held:
- Supporting Families with Early-Stage T1D
- External support provided: The Kids Research Institute Australia EMBRACE Childhood Trauma Group - explore the mental health experiences of young people aged 13 - 17 years living with T1D and codesign a mental health program to best support their wellbeing.